5 Week Update

Hi Keep Pounding Rob team!

Wednesday, April 3rd will be 5 weeks post transplant. He continues to get stronger each day-step by step, one day at a time!

His hemtologist appointment was yesterday, and below are 3 quick updates:

1. Low blood pressure, high pulse rate. Rob’s blood pressure has been too low. And his pulse is too high. This may be leading to his consistent dizziness.

He has been referred to a cardiologist, and I’ll update when I know more information.

Until then, we are to monitor both the
blood pressure and pulse every few hours and keep a record to show the doctor. We are to head to the LCI clinic or ER if it gets too low.

2. His white blood cell count is too high, indicating he is fighting off an infection. Because he is only 35 days out of transplant, infections are very risky. The infection is what put him back in the hospital last time.

3. His PICC line was taken out, due to concerns of infection and concerns over clots forming. He is thrilled to have it out!

Ending on a positive note, he is keeping down high protein ensures and other liquids! Solid foods not so much, but getting all of the liquids in is a great sign at this point post transplant!

I will post another update after the cardiologist appointment. We will all feel better getting his blood pressure back up to normal, and his pulse back down to normal as well.

Thank you for helping us Keep Pounding!!

Thoughts on Being Readmitted

The last thing we wanted to hear a week ago today was “We are readmitting you!”

But that is a reality for 50 percent of stem cell transplant patients.

The transplant team does a remarkable job of preparing you for this reality. However, we all know how easy it is to say “That won’t happen to us”…just like we did.

We are learning from the medical professionals and other patients, that this IS post trasplant life. This is why they like you to stay close to the hospital for at least a few months post transplant.

Rather than thinking, “Oh no, we might get readmitted again!” (normal train of thought), we have learned to rethink things a bit.

Atrium Hospital, especially the 4B and 4T wings, are outstanding resources if and when post transplant complications pop up.

The LCI clinic and Atrium Hospital are there to help Rob and other patients like him continue to Keep Pounding through post transplant complications.  Sometimes this is done at the clinic, other times it’s at the hospital. We couldn’t be more grateful for their knowledge, help and teamwork at both locations!

And as always, we are incredibly grateful for you, Keep Pounding Rob team!!

Home!!!

Hi Keep Pounding Rob team!

We are home!!

Thank you sooo much for helping us through that unexpected return trip to the hospital!

Rob will continue the meds they added at the hospital to his regular post transplant meds.

Unless needed sooner, he has an appointment next week with the hemtologist.

For now, we look forward to Rob resuming the post transplant care, including tons of rest and gradual walking, slow and steady!

Thank you so much for being there for us, Keep Pounding Rob team!!

One Step Closer to Discharge!

Rob had a wonderful day today!

He is off the IV pole, and his vitals continue to be strong.

He has walked 12 laps through out the day!!

If all goes well this evening, he may be discharged tomorrow.

They switched him from IV meds or oral meds, to see how he responds before discharging him. They have been and will continue to monitor the vitals closely, to make sure this change hasn’t affected anything on that end.

He has been able to keep a ton of liquids down again, and even added some solid food in!

We are waiting on the nightly labs to come in, and then will see what tomorrow brings.

Thank you for being there for us!

More tomorrow!

Fun Trivia Time

Geography Triva 🙂

The wing where Rob has been since Tuesday is beautifully decorated with large blown up photos.

The nurses told us each picture in the wing is taken from a location in North Carolina and South Carolina.

Can you guess any or all of the five locations below? There are many more photos, but we’ll start with these.

If you know the location, post in the comments, or send a text/email to us! For the record, we don’t know the answers, as the locations aren’t posted next to the pictures. We just know they are all taken in North Carolina and South Carolina.

So, let’s have some fun, shall we?!

Picture One:

Picture Two:

Picture There:

Picture Four:

Picture Five

Any ideas, Keep Pounding Rob team? 🙂

Saturday Update & Thank You

Hi Keep Pounding Rob team!

Another day of improvement!

First, a huge thank you for keeping up with Rob’s progress through our blog! It helps me to write the information down, so that way I don’t miss any important details when sharing updates.

We welcome and are so thankful your blog comments, texts, calls and emails! They help keep our spirits lifted!

Ya’ll have been there through the bad this week (and beyond), now for the good!!

Rob has made HUGE strides today!!

1. Rob is OFF the 24/7 heart and oxygen monitors, and his vital signs have been doing well!

2. He is walking with the pole, as long as closely supervised by a nurse or myself. This is huge considering how weak his muscles were a few days ago!

3. He has been in antibiotics and an IVIG infusion today, and both will help his immune system fight off any infections.

4. During today’s long infusions, we watched the games and played a few hands of cards. We were so scared about how quickly he went downhill, that being able to simply watch basketball and play cards was the best date ever!!

More updates tomorrow after the morning rounds from his phenomenal medical team. Thank you, Keep Pounding Rob team!! Ya’ll are quite phenomenal as well!!

Friday Update: Good News

Hi Keep Pounding Rob team!!

Some good news to share!

Rob’s blood pressure is improving! He made it through the night with normal blood pressure readings, the first time since time since being readmitted!

The doctors agreed he has an infection, and the infection is the cause of all of the difficulty,  including the severe muscle weakness.

He is still on oxygen, yet they have weaned him from it a bit, which is a great sign.

He is still on fluids, but those are being weaned as well.

The heart monitor is staying put for right now.

Rob was able to get up and move around a bit today. He has been resting  after an incredibly busy (and early) morning.

Before 9:15 this morning,  11 different medical professionals came in to share their expertise with us. Some of these amazing and life saving teams include his nurses,  and doctors in hemtology, pulmnology, and infectious diseases.

We are grateful for his entire medical team being so proactive and starting him on antibiotics, in case of possible infection. This was done right away before the lab results came back. Just seeing how quickly he went backwards, and with symptoms  not usually associated with stem cell transplant recovery, makes us beyond thankful for his proactive medical team!

Speaking of grateful, thank all of you, Keep Pounding Rob team!! You have helped us get through this setback!!

The goal is to get Rob strong enough where he was post transplant. Back to the original schedule of lots of resting, walking, and recovering. He had four good days of doing this after we got home, and we look forward to resuming that soon. We realize it may not be at the exact same starting point as post transplant, but it is a step in the right direction!

And, speaking of steps, the hemtologist is going to talk with Rob tomorrow about doing some hall walking (slowly and supervised).  Please pray for strength for that to happen!

Thank you for helping Rob Keep Pounding!!