Here is our list of resources we have found to be helpful in learning more about Multiple Myeloma.
Please share any resources you have by leaving a comment or sending an e-mail to keeppoundingrob@gmail.com.
Sandy Hirsch Charlotte Multiple Myeloma Support Group
This amazing group meets on the 1st Saturday of each month from 10:00 AM – 12:00 PM.
Meeting Location:
Carmel Presbyterian Church
2048 Carmel Road
Ligon Building
Charlotte, NC 28226
International Myeloma Foundation (IMF)
From their website: “The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy.”
Multiple Myeloma Research Foundation
From their website: “The MMRF fights for a world where every person has precisely what they need to prevent or defeat multiple myeloma whenever they need it.”
American Cancer Society’s Multiple Myeloma Information
From their website: “Here you can find out all about multiple myeloma, including risk factors, symptoms, how it is found, and how it is treated.”
From their website: “The MYELOMA CROWD is a division of The CrowdCare Foundation, a patient-driven, 501(c)3 non-profit organization that empowers patients with rare diseases at each step of their disease journey.-from diagnosis, through education, care and on to a cure.”
From their website:“At SparkCures, our goal is to make it simple and easy for myeloma patients to find, understand and connect with eligible clinical trials.”
Books:
Understanding Multiple Myeloma
By: Cristina Gasparetto, MD and Dharshan Sivaraj
The Ultimate Marathon: My Journey With Multiple Myeloma Cancer
By: Tim McNeill
Keep Pounding Rob! 