Wednesday Update

Rob has had a tough and busy day at the hospital.

He is currently on oxygen and breathing treatments to improve his oxygen level.

He is now on medicine to help raise his blood pressure.

He had another ultrasound on the clot that resulted from the triport.

This afternoon, he also had scans on his brain, lungs and heart to  rule out any additional clots or something else that may be contributing to the low blood pressure, high heart rate, trouble walking,  etc.

Rob is now on 24/7 monitors to keep an eye on his heart and oxygen level.

We don’t have any results of the tests from today,  but I will post when we do.

Thank you, Keep Pounding Rob team for your prayers and support!!

Please keep them coming, be it by texts, emails, blog comments, or mail. They really do help lift our spirits more than I can express!!❤❤❤



Readmitted

Rob has been readmitted to the hospital today.

His blood pressure has been worse (too low) over the past three days. Walking and standing have become quiet difficult, and he has had several falls as well.

On the plus side, his initial labs from this morning are looking good! We need to find out the cause and a solution for the low blood pressure and his unsteadiness, and this is the best way for them to do it.

I will update as soon as we learn more.

Please keep those Keep Pounding Prayers coming!!

Sunday Update

Hi Keep Pounding Rob team!

Today marks 5 days home, and I wanted to give an update.

The first few days home, Rob kept us his normal routine from the hospital, lots of sleeping and walking in between, as encouraged by the doctors.

For the next few weeks, Rob will have appointments 3 times a week at Levine Cancer Institute (LCI). The purpose is to draw labs and then give the appropriate medicine if needed, be it platelets, fluids, etc. Yesterday was the first such appointment (LCI is open 7 days a week, thankfully).

Yesterday was also an incredibly rough and scary day for us. Due to low blood pressure, Rob had two close calls of falling, one at home and the other at LCI.

They gave him fluids, checked his BP, and did labs. After the 2nd bag of fluids, his BP looked much better, and he was getting much more color in his face. Rob had a similar instance like that in the hospital, and is something the doctors are watching closely. 

He is able to ear a bit more than Jell-O, and while some things don’t taste exactly like they should, they are getting closer to edible for him. Even the slight increase in appetite is a much welcome change! 🙂

In true Rob spirit, he continues to keep pounding, and as long as he isn’t dizzy, he plans to get back to his normal post transplant schedule.

We had a visitor while at LCI yesterday! Meet Chase, the therapy dog that visits patients while they are receiving treatments! After the scary morning, Chase was a much welcome distraction.

Thank you for your continued words of encouragement, prayers, support, cards, texts and e-mails! They are helping Rob Keep Pounding!!

Home With Your Help!!

This is seconds after Rob rang the Victory Bell, signifying the end of stem cell transplant hospital stay. We want to thank you a million times over for helping us get through a tough 2 1/2 weeks at the hospital!!

More updates coming tomorrow about the weeks and months ahead.

Thank you again from the bottom of our hearts!!! We couldn’t have done this without all of you helping Rob Keep Pounding!!

Coming Home!!

Transplant Status: Day +13

Hospital Stay: 15 Days

DISCHARGE TOMORROW!!!

Hi Keep Pounding Rob team!!

I wasn’t able to update last night, as we didn’t get the lab result in. However, the doctor just left and he is going home TOMORROW!!!

THANK YOU so much for your prayers, thoughts and love!! We are on cloud nine, and Rob can’t wait to get home to Dexter, fresh air, and all the comforts of home!

Many have asked us what’s coming up in the next few weeks. Here is what we have learned from the doctors:

No visitors for a while, as Rob’s counts are still low and will be for a while. They said he has come to far to risk getting an infection that could land him back in the hospital. He is also not allowed to go into any stores, restaurants, etc.- other than trips back and forth to LCI (Levine Cancer Institute) for appointments. There is a designated waiting room at LCI for stem cell patients, keeping them further protected.

Rob will be seen 3 times weekly to check his counts and get platelets and blood transfusions as needed. Rob’s first appointment will be this Friday to make sure all is well.

He will be keeping up is walking, with plenty of naps in between, as is the schedule here. His body is still going through a huge overhaul getting used to the new stem cells, and still recovering from the high dose chemotherapy.

I will update as I learn more details between now and tomorrow.

Thank you again for helping Rob through the past 15 days in the hospital!!



One Step Closer!

Hi Keep Pounding Rob team!

Rob had an excellent report from the doctor this morning!

We are definitely scoreboard watching tonight! 😉

Rob and I continue to walk the halls, and tomorrow he will get his 4th out of 5th ribbon, equaling 40 walks!! For anyone new to this blog, especially those that are getting ready to go through a stem cell transplant, here is what our transplant unit’s “Moving and Motivation” sheet says about walking:

“Exercise has been proven to help patients maintain or improve their quality of life. It can help reduce pain, nausea, and diarrhea as well as anxiety and depression.

For our transplant patients, walking can reduce hospital stays with faster engraftment times as well as reduce the number of transfusions patients need by improving hemoglobin levels.”

On a light note, it’s nice to have a ribbon reward system for walking. We sure didn’t win any ribbons today when we played “Are You Smarter Than a 5th Grader?” 😉

The scoreboard will be updated with a new blog post, as soon as the lab results come back.

Thank you for being there, Keep Pounding Rob team!!

Scoreboard Watching

3/9 LABS
3/10 LABS

Every night, blood work is drawn and sent to the labs.  The blood counts are the best indicators to Rob’s recovery. For example, when he was at his lowest, the WBC (White Blood Cells) was 0.1.  

White blood counts is an indicator of how well your immune system is working. This is why they take so much precaution with visitors, food, masks, gowns, gloves, hand washing and hand foam.

As you can see from last night’s labs on the left picture above, there has been significant improvement from his lowest WBC point at 0.1 to last night’s count at 0.5!

On the right side, you’ll see tonight’s labs, which continue to show good improvement on the WBC!! The platelets likely dropped this evening due to the removal of the tri-port and the insertion of the PICC line. The nurse is pleased with how is labs look tonight.

Each night, we eagerly wait for the results to appear on the whiteboard, much like fans wait for the scores to appear on the scoreboard.

When Rob’s ANC reaches 500 for 3 days in a row, he will be ready for discharge.

Please pray for the ANC to reach 500!! Thank you for your prayers!!