Today we had some GREAT news at the hematologist appointment, and some not so great news.
First, the great news: the hematologist was thrilled with his lab results, especially as his M-Spike level has decreased significantly by 85%! This is more evidence that that the chemotherapy is working!!! We are elated with this improvement!
We are grateful beyond words, while acknowledging the journey ahead is being hindered by RSV.
Rob was supposed to begin round 4 of chemo today. However, the doctor postponed it due to the RSV and his coughing, wheezing and shortness of breath. The nurses and doctor couldn’t believe how bad he was sounding, and as such, ordered a CT scan today.
The doctor reviewed the CT scan and referred him to an infectious disease specialist at Levine Cancer Institute, who he sees Wednesday. He also started a new prescription this evening.
If he has improved in the next week, he will resume his chemotherapy next Monday.
Thank you so much for your prayers! Please keep them coming as we face these unexpected bumps in the road.
Our thoughts and prayers go out to everyone coping with aftermath of the winter storm! Stay safe and warm!!
Today was the six-week follow up with the surgeon oncologist, to check on Rob’s left arm. Brief re-cap for new visitors, Rob’s arm is how we found out he has multiple myeloma. It began hurting to a point where he couldn’t move it, though he hadn’t done anything to injure it. The doctor ordered an MRI, which revealed a tumor had fractured his arm. After further imaging tests, we found out he had 7 additional tumors throughout his body, and he was diagnosed with multiple myeloma.
Back to this morning, the surgeon was thrilled with the progress he has made!
The surgeon said that the bone is growing back and healing, and in six weeks, he expects it to be fully healed. He showed us on the x-rays where the healing was occurring. He said that in another 6 weeks, Rob should have full recovery and use of his arm! From having surgery 3 months ago to this update today, are over the moon with this news!
Thank you for the prayers, support and love!!!
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Today was a long day with a pulmonologist appointment, followed by labs and chemo at Levine. This is in addition to the 3 x day breathing treatments for RSV that he does at home.
The RSV, which consists of coughing, wheezing and shortness of breath is still around causing problems. We are grateful that his lungs do sound better according to the pulmonologist. He informed us that RSV has a long recovery period and usually continues to cause the coughing/wheezing/shortness of breath for a few months. Rob’s RSV started about 5 weeks ago.
Thankfully, RSV didn’t delay chemo today. However, we learned that it may delay any upcoming stem cell transplant. This is not what we wanted to hear.
The main treatment goal (after chemo) is a stem cell transplant, due to the aggressive nature and stage of his cancer. Therefore, any potential delay just stinks, to put it mildly.
Please pray that the RSV goes away, well before a stem cell transplant.
Please pray for the breathing treatments that Rob does 3 x a day become easier
Please pray that as we deal with this pesky RSV, the chemo he is going through now continues to fight the tumors in his body. We were quiet excited to learn a few weeks ago it was helping shrink the tumor on his lung, and we are holding on to prayers and hope that it continues to do the same for all of his tumors.
Thank you beyond words for your prayers and love, and for helping Rob Keep Pounding!!!
Rob was able to enjoy some turkey and stuffing on Thanksgiving, and yesterday his chemo went well. His RSV cough is improving slowly but surely. So much to be thankful for!
Monday will be busy with a pulmonologist appointment, labs and chemo again.
We hope everyone had a wonderful Thanksgiving!! 🙂
Thank you for everything, Keep Pounding Rob Team!!
Rob’s chemo went well, with the usual side effects of nauseous. We are thankful for a medicine that helps with it, and one that doesn’t cause major drowsiness unlike some anti-nauseous meds.
A few weeks ago in an earlier post, I mentioned a man we met at Rob’s earlier chemo. He is also fighting multiple myeloma. He had been through chemo, a stem cell transplant, and is now back on chemo. We ran into him again yesterday. There was something so kind and reassuring about seeing what a fighter he is! His attitude is certainly one to admire and follow in this journey.
Speaking of following in this journey, thank you for your continued support, prayers, calls, texts and mail! They help keep Rob going and we are thankful for the best Keep Pounding Rob team anyone could ask for!!
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