Cardiologist Update, 4/13

Hi Keep Pounding Rob team! Rob’s cardiologist appointment was yesterday. Here is what we know:

1. Rob’s heart rate is consistently too high.

2. Rob has low blood pressure, and is on week two of a new medicine to help raise it.

3. The medicine usually prescribed to treat a high heart rate also lowers blood pressure. The low blood pressure is one of the factors that contributed to his falls, and landed Rob back in the hospital.

4. The cardiologist said that this is a serious problem, and is going to be very tricky to treat. We are thankful for his knowledge and kindness, and grateful to add him to the Keep Pounding Rob team!

Rob is currently trying a new medicine, and we are monitoring his blood pressure and pulse to report back to the cardiologist.

Please pray that this medicine gets his heart rate under control, without lowering his blood pressure to a dangerous level.

Ending on a positive note, Rob ate about 10 bites of pasta tonight, in addition to his usual high protein ensures! This is a huge milestone, and hopefully we will have many more of these to report! 🙂

Thank you for being there, Keep Pounding Rob team!! 🙂

Oncologist Update, 4/11

Hi Keep Pounding Rob team!

Today was Rob’s weekly post stem cell oncology appointment.

His numbers look good! As such, he has clearance to visit a bookstore, at non-busy times, with his cane and mask.

This is HUGE, as the only outings he has been able to go on have been to LCI and back since last fall (due to chemo and RSV).

Tomorrow, Rob has a cardiologist appointment.

His pulse is still too high on a daily basis, accompanied by dizziness.

We are hopeful to get answers and a plan to get that back to normal.

Rob will have a bone marrow biopsy and a PET scan in a few weeks. These tests will show how well the high dose chemo and stem cell transplant have helped his body POUND the cancer. 😉

I will update tomorrow after the cardiologist appointment.

Until then, thank you for helping us Keep Pounding!!

Day 38 Update: Keep Pounding!

The title of this blog was inspired by former Carolina Panther player and coach, Sam Mills.  After diagnosed with cancer, he was quoted as saying to his team, “When I found out I had cancer, there were two things I could do: quit, or keep pounding. I’m a fighter. I keep pounding.”   

Rob continues to Keep Pounding, despite some complications! Today is day 38 post stem cell transplant. 

His strength to keep pounding, even on the weak days, continues to amaze and inspire me.

Rob is still primarily on a liquids diet, consisting of high protein Ensures, Gatorade, Sprite and water. However, he has been able to eat some baked potatoes, a little ice cream, and some cooked carrots. He has lost a lot of weight, but he continues to Keep Pounding!

While walking a short distance, he is sometimes steady on his feet, and sometimes very unsteady, but he continues to Keep Pounding! 

His blood pressure is still too low and his pulse is still too high, but he continues to Keep Pounding!

As our transplant coordinator says (paraphrased) –

Don’t look at far you’ve have to go, instead look at how far you’ve come! 

We are able to do just that with your love, strength and prayers! This is how we Keep Pounding!

Thank you for being there, Keep Pounding Rob team!!

 

Dexter says “Keep Pounding Dad!” with his Keep Pounding bandana. 🙂 Thank you, Abigail and Lincoln! 🐶❤❤

5 Week Update

Hi Keep Pounding Rob team!

Wednesday, April 3rd will be 5 weeks post transplant. He continues to get stronger each day-step by step, one day at a time!

His hemtologist appointment was yesterday, and below are 3 quick updates:

1. Low blood pressure, high pulse rate. Rob’s blood pressure has been too low. And his pulse is too high. This may be leading to his consistent dizziness.

He has been referred to a cardiologist, and I’ll update when I know more information.

Until then, we are to monitor both the
blood pressure and pulse every few hours and keep a record to show the doctor. We are to head to the LCI clinic or ER if it gets too low.

2. His white blood cell count is too high, indicating he is fighting off an infection. Because he is only 35 days out of transplant, infections are very risky. The infection is what put him back in the hospital last time.

3. His PICC line was taken out, due to concerns of infection and concerns over clots forming. He is thrilled to have it out!

Ending on a positive note, he is keeping down high protein ensures and other liquids! Solid foods not so much, but getting all of the liquids in is a great sign at this point post transplant!

I will post another update after the cardiologist appointment. We will all feel better getting his blood pressure back up to normal, and his pulse back down to normal as well.

Thank you for helping us Keep Pounding!!

Thoughts on Being Readmitted

The last thing we wanted to hear a week ago today was “We are readmitting you!”

But that is a reality for 50 percent of stem cell transplant patients.

The transplant team does a remarkable job of preparing you for this reality. However, we all know how easy it is to say “That won’t happen to us”…just like we did.

We are learning from the medical professionals and other patients, that this IS post trasplant life. This is why they like you to stay close to the hospital for at least a few months post transplant.

Rather than thinking, “Oh no, we might get readmitted again!” (normal train of thought), we have learned to rethink things a bit.

Atrium Hospital, especially the 4B and 4T wings, are outstanding resources if and when post transplant complications pop up.

The LCI clinic and Atrium Hospital are there to help Rob and other patients like him continue to Keep Pounding through post transplant complications.  Sometimes this is done at the clinic, other times it’s at the hospital. We couldn’t be more grateful for their knowledge, help and teamwork at both locations!

And as always, we are incredibly grateful for you, Keep Pounding Rob team!!

Home!!!

Hi Keep Pounding Rob team!

We are home!!

Thank you sooo much for helping us through that unexpected return trip to the hospital!

Rob will continue the meds they added at the hospital to his regular post transplant meds.

Unless needed sooner, he has an appointment next week with the hemtologist.

For now, we look forward to Rob resuming the post transplant care, including tons of rest and gradual walking, slow and steady!

Thank you so much for being there for us, Keep Pounding Rob team!!

One Step Closer to Discharge!

Rob had a wonderful day today!

He is off the IV pole, and his vitals continue to be strong.

He has walked 12 laps through out the day!!

If all goes well this evening, he may be discharged tomorrow.

They switched him from IV meds or oral meds, to see how he responds before discharging him. They have been and will continue to monitor the vitals closely, to make sure this change hasn’t affected anything on that end.

He has been able to keep a ton of liquids down again, and even added some solid food in!

We are waiting on the nightly labs to come in, and then will see what tomorrow brings.

Thank you for being there for us!

More tomorrow!