Monthly Labs and Eye Update

Hi Keep Pounding Rob team!

Rob’s monthly lab work looks great! He will will continue chemotherapy, 3 weeks on, 1 week off.

“If your disease re-appears, we have trials!” A heartfelt quote from Rob’s hemtologist, during the appointment today.

Without the past multiple myeloma drug trials, patients would not have had as good outcome now verses 10 years ago.

Rob told his doctor today he is ready to participate in a trial if his cancer relapses. It feels good having that plan and mindset in place- especially as he remains in “Very Good Partial Response.” Not as good as complete response, and thankfully not as bad as no response.

On a much  lighter note- check out this creative and fun surprise that one of his nurses gave us:

A Halloween hand filled with candy!πŸŽƒπŸ˜ŠπŸ‘

On to the eye update:

Rob has been following the surgeon’s orders of lying down all day and night on one side with the exception of 3 10-minute breaks. He is able to walk up the street and back once a day- using the cane as a precuation since he still can’t see out of that eye.

The longer time to get his eyesight back is due to the many other tears they saw during surgery, in addition to the detached retina.

He probably won’t be able to see out of that eye for another few weeks. We will know more on this Friday, along with an update on positioning restrictions. I’ll post an update here after the appointment.

While Rob wasn’t able to go to the Multiple Myemoma Research Foundation (MMRF) 5k this past weekend, I went and picked up our shirts and some other goodies. More about this awesome event in the next post. 😊

Thank you to all that supported us in the walk! We have big plans for MMRF 5k next October (date to be announced) including team shirts for our Keep Pounding Rob walkers and runners!πŸšΆβ€β™‚οΈπŸšΆβ€β™€οΈπŸƒβ€β™‚οΈπŸƒβ€β™€οΈπŸ‘πŸ‘ŠπŸŽ‰πŸŽ‰πŸŽ‰

Thank you so much for your thoughts and prayers!!!

Darn Bump in the Road

Rob has a detached retina and hemorrhage, and will have surgery tomorrow.

The stem cell transplant put him at increased risk for it, as did family history.

We are thankful to add an excellent eye surgeon to his care team!

Surgery is scheduled for 11:45 tomorrow, and I will update afterwords.

Thank you for your continued thoughts and prayers!!

Keep Pounding Room at LCI

Levine Cancer Institute (LCI) has a new room for patients and caregivers to relax in, while in between appointments and testing.

We stopped in briefly this morning and took a few pictures. This is a welcome addition for cancer patients and families!!

More pictures and much more information to come. For our new friends to LCI, this is located next to Lori’s gifts, in between LCI I and LCI II buildings, on the 3rd floor (right around the corner from Caribou Coffee).

Good report with a slight detour

Great news, the labs from today look great!! Once again, no active multipe myeloma! Thank you for your prayers and thoughts, Keep Pounding Rob team!!πŸ˜ŠπŸ‘πŸ˜ŠπŸ‘

Now for the slight detour:

Today at Rob’s monthly infusion, Rob began having trouble seeing out of his right eye. It came on fast, and he could not tell you how many fingers you held up, and then couldn’t tell you the color of your hair. Right now, he can’t see you wave at him standing a foot away.

After consulting with the hematologist, we were worked into the ophthalmologist office. We learned that Rob had an eye bleed, causing Rob to not see out of his right eye. The good news is that there is no damage to the optic nerve.

They think the blood should drain within 48 hours, and then his vision should return. Rob will then see a retina specialist.

He doesn’t think it is multiple myeloma related, thankfully!

He did mention wanting Rob off of the daily aspirin that he is on (to prevent blood clots caused by the chemo), but also understands this might not be possible. We’ll know more on that next week.

Hopefully, this is a minor issue that comes with age and nothing else. We will know more Wednesday, and post an update then.

Thank you for the continued prayers and thoughts, Keep Pounding Rob team!!

Multiple Myeloma Teams for Cures Walk/Run 5k!

Hi Keep Pounding Rob team!!

A quick update, and then on to some EXCITING news!!!

Rob had a great monthly report from Levine today! His cancer remains inactive. He will have a lung scan next week, as a proactive approach to keep an eye on an area there. He’s continuing monthly IVIG infusions, labs, palliative care and oncology appointments.

Thank you for your continued thoughts and prayers!!

EXCITING NEWS!!!

What: Multiple Myeloma Research Foundation Team for Cures 5K Walk/Run

When: Saturday, October 26th, 2019

Where: Clanton Park 1520 Clanton Rd. Charlotte, NC 28208 

Keep Pounding Rob Walk Page: https://walkrun.themmrf.org/Charlotte/KeepPoundingRob

On October 26th, 2019, Rob and I are participating in a walk to raise funds for the Multiple Myeloma Research Foundation. (MMRF).

A brief explanation directly from the MMRF website of how amazing this organization is in the fight for a cure:

β€œThe mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. Nearly 90% of total budget goes directly to research and related programming. The MMRF has been awarded Charity Navigator’s coveted four star rating for 12 consecutive years, the highest designation for outstanding fiscal responsibility and exceptional efficiency. The MMRF has facilitated unprecedented accomplishments including helping to bring ten new drugs to market that are now standard therapies for patients with multiple myeloma and being used or explored as treatments for other cancers.”

We are excited to join other multiple myeloma fighters on October 26th!! If you’d like to participate in the walk with us, either in person or as a “virtual” walker, please visit Rob’s Keep Pounding walk page here:

https://walkrun.themmrf.org/Charlotte/KeepPoundingRob

All donations go directly to the Multiple Myeloma Research Foundation.

Thank you, Keep Pounding Rob team!!! We never dreamed Rob would be preparing to walk a 5K, and appreciate your thoughts and prayers that helped him get to this point!!