Thankful

Happy Thanksgiving Keep Pounding Rob friends and family! 😊

A quick update on labs and eyes (yep, plural).

The monthly labs look great!! The multiple myeloma remains inactive. We are so thankful beyond words!

Rob’s right eye that had the detached retina is healing well, though taking longer to heal. He hopes to have full vision in that eye around the New Year.

Now on to Rob’s left eye. Rob started seeing spots, swirls and a black curtain in his eye after the hematologist appointment two days ago.

When we called the retina specialist, they said to come in and not eat or drink anything between that time and the appointment.

Luckily, what Rob was experiencing was not a detatched retina, but retina tears. The retina specialist was able to perform a laser procedure to repair the tears.

We are so thankful it didn’t involve surgery! Rob’s vision should be clear in that eye in a week or so.

Despite these setbacks, we are so thankful to have made such progress from this time last year!!

I mean this with all of the sincerity I can express on a blog- we could not have gotten this far without the Keep Pounding Rob team!! Ya’ll are the most kind, loving and thoughtful people ever, and we are so fortunate to have each of you on our side!!

Happy Thanksgiving, and much love to you all!!❀❀❀

Monthly Labs and Eye Update

Hi Keep Pounding Rob team!

Rob’s monthly lab work looks great! He will will continue chemotherapy, 3 weeks on, 1 week off.

“If your disease re-appears, we have trials!” A heartfelt quote from Rob’s hemtologist, during the appointment today.

Without the past multiple myeloma drug trials, patients would not have had as good outcome now verses 10 years ago.

Rob told his doctor today he is ready to participate in a trial if his cancer relapses. It feels good having that plan and mindset in place- especially as he remains in “Very Good Partial Response.” Not as good as complete response, and thankfully not as bad as no response.

On a much  lighter note- check out this creative and fun surprise that one of his nurses gave us:

A Halloween hand filled with candy!πŸŽƒπŸ˜ŠπŸ‘

On to the eye update:

Rob has been following the surgeon’s orders of lying down all day and night on one side with the exception of 3 10-minute breaks. He is able to walk up the street and back once a day- using the cane as a precuation since he still can’t see out of that eye.

The longer time to get his eyesight back is due to the many other tears they saw during surgery, in addition to the detached retina.

He probably won’t be able to see out of that eye for another few weeks. We will know more on this Friday, along with an update on positioning restrictions. I’ll post an update here after the appointment.

While Rob wasn’t able to go to the Multiple Myemoma Research Foundation (MMRF) 5k this past weekend, I went and picked up our shirts and some other goodies. More about this awesome event in the next post. 😊

Thank you to all that supported us in the walk! We have big plans for MMRF 5k next October (date to be announced) including team shirts for our Keep Pounding Rob walkers and runners!πŸšΆβ€β™‚οΈπŸšΆβ€β™€οΈπŸƒβ€β™‚οΈπŸƒβ€β™€οΈπŸ‘πŸ‘ŠπŸŽ‰πŸŽ‰πŸŽ‰

Thank you so much for your thoughts and prayers!!!

Darn Bump in the Road

Rob has a detached retina and hemorrhage, and will have surgery tomorrow.

The stem cell transplant put him at increased risk for it, as did family history.

We are thankful to add an excellent eye surgeon to his care team!

Surgery is scheduled for 11:45 tomorrow, and I will update afterwords.

Thank you for your continued thoughts and prayers!!

Keep Pounding Room at LCI

Levine Cancer Institute (LCI) has a new room for patients and caregivers to relax in, while in between appointments and testing.

We stopped in briefly this morning and took a few pictures. This is a welcome addition for cancer patients and families!!

More pictures and much more information to come. For our new friends to LCI, this is located next to Lori’s gifts, in between LCI I and LCI II buildings, on the 3rd floor (right around the corner from Caribou Coffee).

Good report with a slight detour

Great news, the labs from today look great!! Once again, no active multipe myeloma! Thank you for your prayers and thoughts, Keep Pounding Rob team!!πŸ˜ŠπŸ‘πŸ˜ŠπŸ‘

Now for the slight detour:

Today at Rob’s monthly infusion, Rob began having trouble seeing out of his right eye. It came on fast, and he could not tell you how many fingers you held up, and then couldn’t tell you the color of your hair. Right now, he can’t see you wave at him standing a foot away.

After consulting with the hematologist, we were worked into the ophthalmologist office. We learned that Rob had an eye bleed, causing Rob to not see out of his right eye. The good news is that there is no damage to the optic nerve.

They think the blood should drain within 48 hours, and then his vision should return. Rob will then see a retina specialist.

He doesn’t think it is multiple myeloma related, thankfully!

He did mention wanting Rob off of the daily aspirin that he is on (to prevent blood clots caused by the chemo), but also understands this might not be possible. We’ll know more on that next week.

Hopefully, this is a minor issue that comes with age and nothing else. We will know more Wednesday, and post an update then.

Thank you for the continued prayers and thoughts, Keep Pounding Rob team!!