Happy Thanksgiving Keep Pounding Rob friends and family! 😊

A quick update on labs and eyes (yep, plural).

The monthly labs look great!! The multiple myeloma remains inactive. We are so thankful beyond words!

Rob’s right eye that had the detached retina is healing well, though taking longer to heal. He hopes to have full vision in that eye around the New Year.

Now on to Rob’s left eye. Rob started seeing spots, swirls and a black curtain in his eye after the hematologist appointment two days ago.

When we called the retina specialist, they said to come in and not eat or drink anything between that time and the appointment.

Luckily, what Rob was experiencing was not a detatched retina, but retina tears. The retina specialist was able to perform a laser procedure to repair the tears.

We are so thankful it didn’t involve surgery! Rob’s vision should be clear in that eye in a week or so.

Despite these setbacks, we are so thankful to have made such progress from this time last year!!

I mean this with all of the sincerity I can express on a blog- we could not have gotten this far without the Keep Pounding Rob team!! Ya’ll are the most kind, loving and thoughtful people ever, and we are so fortunate to have each of you on our side!!

Happy Thanksgiving, and much love to you all!!❤❤❤

Monthly Labs and Eye Update

Hi Keep Pounding Rob team!

Rob’s monthly lab work looks great! He will will continue chemotherapy, 3 weeks on, 1 week off.

“If your disease re-appears, we have trials!” A heartfelt quote from Rob’s hemtologist, during the appointment today.

Without the past multiple myeloma drug trials, patients would not have had as good outcome now verses 10 years ago.

Rob told his doctor today he is ready to participate in a trial if his cancer relapses. It feels good having that plan and mindset in place- especially as he remains in “Very Good Partial Response.” Not as good as complete response, and thankfully not as bad as no response.

On a much  lighter note- check out this creative and fun surprise that one of his nurses gave us:

A Halloween hand filled with candy!🎃😊👍

On to the eye update:

Rob has been following the surgeon’s orders of lying down all day and night on one side with the exception of 3 10-minute breaks. He is able to walk up the street and back once a day- using the cane as a precuation since he still can’t see out of that eye.

The longer time to get his eyesight back is due to the many other tears they saw during surgery, in addition to the detached retina.

He probably won’t be able to see out of that eye for another few weeks. We will know more on this Friday, along with an update on positioning restrictions. I’ll post an update here after the appointment.

While Rob wasn’t able to go to the Multiple Myemoma Research Foundation (MMRF) 5k this past weekend, I went and picked up our shirts and some other goodies. More about this awesome event in the next post. 😊

Thank you to all that supported us in the walk! We have big plans for MMRF 5k next October (date to be announced) including team shirts for our Keep Pounding Rob walkers and runners!🚶‍♂️🚶‍♀️🏃‍♂️🏃‍♀️👍👊🎉🎉🎉

Thank you so much for your thoughts and prayers!!!

Darn Bump in the Road

Rob has a detached retina and hemorrhage, and will have surgery tomorrow.

The stem cell transplant put him at increased risk for it, as did family history.

We are thankful to add an excellent eye surgeon to his care team!

Surgery is scheduled for 11:45 tomorrow, and I will update afterwords.

Thank you for your continued thoughts and prayers!!

Keep Pounding Room at LCI

Levine Cancer Institute (LCI) has a new room for patients and caregivers to relax in, while in between appointments and testing.

We stopped in briefly this morning and took a few pictures. This is a welcome addition for cancer patients and families!!

More pictures and much more information to come. For our new friends to LCI, this is located next to Lori’s gifts, in between LCI I and LCI II buildings, on the 3rd floor (right around the corner from Caribou Coffee).

Good report with a slight detour

Great news, the labs from today look great!! Once again, no active multipe myeloma! Thank you for your prayers and thoughts, Keep Pounding Rob team!!😊👍😊👍

Now for the slight detour:

Today at Rob’s monthly infusion, Rob began having trouble seeing out of his right eye. It came on fast, and he could not tell you how many fingers you held up, and then couldn’t tell you the color of your hair. Right now, he can’t see you wave at him standing a foot away.

After consulting with the hematologist, we were worked into the ophthalmologist office. We learned that Rob had an eye bleed, causing Rob to not see out of his right eye. The good news is that there is no damage to the optic nerve.

They think the blood should drain within 48 hours, and then his vision should return. Rob will then see a retina specialist.

He doesn’t think it is multiple myeloma related, thankfully!

He did mention wanting Rob off of the daily aspirin that he is on (to prevent blood clots caused by the chemo), but also understands this might not be possible. We’ll know more on that next week.

Hopefully, this is a minor issue that comes with age and nothing else. We will know more Wednesday, and post an update then.

Thank you for the continued prayers and thoughts, Keep Pounding Rob team!!

Multiple Myeloma Teams for Cures Walk/Run 5k!

Hi Keep Pounding Rob team!!

A quick update, and then on to some EXCITING news!!!

Rob had a great monthly report from Levine today! His cancer remains inactive. He will have a lung scan next week, as a proactive approach to keep an eye on an area there. He’s continuing monthly IVIG infusions, labs, palliative care and oncology appointments.

Thank you for your continued thoughts and prayers!!


What: Multiple Myeloma Research Foundation Team for Cures 5K Walk/Run

When: Saturday, October 26th, 2019

Where: Clanton Park 1520 Clanton Rd. Charlotte, NC 28208 

Keep Pounding Rob Walk Page:

On October 26th, 2019, Rob and I are participating in a walk to raise funds for the Multiple Myeloma Research Foundation. (MMRF).

A brief explanation directly from the MMRF website of how amazing this organization is in the fight for a cure:

“The mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. Nearly 90% of total budget goes directly to research and related programming. The MMRF has been awarded Charity Navigator’s coveted four star rating for 12 consecutive years, the highest designation for outstanding fiscal responsibility and exceptional efficiency. The MMRF has facilitated unprecedented accomplishments including helping to bring ten new drugs to market that are now standard therapies for patients with multiple myeloma and being used or explored as treatments for other cancers.”

We are excited to join other multiple myeloma fighters on October 26th!! If you’d like to participate in the walk with us, either in person or as a “virtual” walker, please visit Rob’s Keep Pounding walk page here:

All donations go directly to the Multiple Myeloma Research Foundation.

Thank you, Keep Pounding Rob team!!! We never dreamed Rob would be preparing to walk a 5K, and appreciate your thoughts and prayers that helped him get to this point!!

A picture’s worth a thousand words!

Hi Keep Pounding Rob team!

Before I explain the pictures, Rob’s monthly cancer labs look good! The multiple myeloma remains inactive at this time. We are so thankful! Chemo continues with three weeks on, one week off.

He had excellent reports from his cardiologist and rheumatologist, and will follow up in six months. 

We are monitoring blood pressure regularly, and we have found a good balance with one medicine helping lower the high heart rate while another is helping raise the low blood pressure (due to chemo and stem cell transplant).

Now to the pictures: The pictures above are incredibly significant and we wanted to share. The picture of Rob on the stairs (which he had no idea I took), says so much about his recovery. 

This is the first set of steep steps (other than the ones leading to our back yard) that he has mastered. While going up and down steps is still tricky, he now can attempt-and succeed –at walking up and down stairs in public.  We have always said slow and steady wins the race-and now the staircase!  😉

The second picture was taken recently with our dog, Dexter. This is significant as a year ago, Rob was throwing the tennis ball for Dexter. That’s when he first felt pain in his shoulder, and he thought he had injured it throwing the ball. 

When he became unable to lift his arm, we knew something more was going on. Granted, we had no idea it was cancer, as that was the furthest thing on our mind.  Looking back at a year ago, we would have never imagined that Rob would have been diagnosed with cancer, have 8 cancerous tumors, undergo chemo (including high dose), a stem cell transplant, and continuing chemo today.  After the diagnosis, we never thought that less than a year later, the multiple myeloma would be inactive and under control.  We also would have never imagined the support, love and kindness shown to us by our amazing Keep Pounding Rob team!!

Thanks to his amazing medical teams and all of you, we can enjoy and embrace these pictures of everyday life on a whole new level!! A picture really is worth a thousand words!!

Up Next: 

Rob continues chemotherapy, and can venture out more, with caution (having hand sanitizer and masks nearby, and avoiding anyone is who is knowingly sick). He’ll get re-vaccinated this month. Anyone who goes through multiple myeloma, chemotherapy and a stem cell transplant losses significant portions of his or her immune system, including the protection provided by all vaccinations received as a newborn.  The other vaccinations occur 1 and 1 ½ years after transplant.

Lung scans will occur in the fall, to keep a proactive eye on an area there. 

We’ll continue to provide updates here, along with some information about resources that LCI offers cancer patients and families. 

Good luck to everyone preparing for (or already at) school and college!

Thank you for helping us Keep Pounding!!

Rob Update, 7/14

Hi Keep Pounding Rob team! 🙂

Happy Summer! 🙂

Rob has been making some huge strides over the past month! 🙂 🙂

As of today, Rob’s multiple myeloma is inactive, and while it still shows up in the monthly lab work, it’s a very small and immeasurable amount. It is not enough to light up the scans like it previously did last fall.

Rob’s hematologist checks his myeloma markers and other labs every four weeks, followed by a hematology visit. This is to make sure the maintenance chemotherapy Rob is on is keeping the multiple myeloma inactive.

Rob remains with a “VGPR” diagnoses—Very Good Partial Response. Better than limited or no response, and not as good as complete remission. However, as Rob’s hematologist continues to point out, there is “Very Good” in front of that diagnoses.

On his good days, Rob can walk 2-4 miles (yes, miles!), without any assistance what-so-ever!!

His appetite is improving, though taste is still off for many foods. We’ll take the improvement though and have confidence it’ll continue to improve.

It is very nerve wracking each month when it comes time to check the labs for the multiple myeloma markers. Some of the friends we have met on this journey are doing great, and sadly, one has relapsed, but continues to keep pounding! Our friend, along with all of you, inspire Rob to do the same!

Rob’s smile and wonderful (and joyfully mischievous) sense of humor is back in full force! He has the most positive attitude even on the toughest of days!!

The chemotherapy he is on does lend itself to tough days, including sleep issues, neuropathy pain, overwhelming fatigue and appetite issues. But it’s also given him good days, not to mention great monthly lab results of keeping the multiple myeloma inactive.

Speaking of chemotherapy, Rob’s doctor gave us this analogy to help explain his maintenance chemotherapy regimen:

Think of your yard and weed control. If you don’t spray for weeds, they will come back. Have you ever looked at your yard and thought “Where did those weeds come from?! They weren’t here yesterday?” Hence the importance of a weed killer or other means to take out the weeds and keep them at bay.

If you just use the weed killer once, weeds are more likely to come back. If you use it regularly, the weeds are less likely to take over your yard. If the weeds do return with the weed killer you are using, you change to a different brand or method to eliminate them.

Rob’s maintenance chemotherapy serves the same function, to keep the multiple myeloma cells that are inactive from becoming active and attacking his body like it did last fall–the same way that weeds can attack our yards at any time. The high dose chemo he had with the stem cell transplant only killed active multiple myeloma cells, not inactive cells.

Next up:

Rob has quite a few appointments, including surgical oncology, rheumatology, cardiology and palliative care. He’ll have some lung scans coming up in the fall, so that his pulmonologist and hematologist can keep an eye on that area. We are thankful beyond words that his medical team is staying on the proactive side.

He’ll continue chemotherapy with 3 weeks on, 1 week off regularly for quite a while. He’ll also have monthly infusions of IVIG (to strengthen his immune system) and Reclast infusions every 3 months (to strengthen his bones). He’ll begin a series of vaccinations, just like newborns get. When you go through a stem cell transplant, you must get revaccinated for things like measles, chicken pox, etc.

Thank you so much for helping us get this far, Keep Pounding Rob team!!

We hope everyone is having a wonderful summer!