Darn Bump in the Road

Rob has a detached retina and hemorrhage, and will have surgery tomorrow.

The stem cell transplant put him at increased risk for it, as did family history.

We are thankful to add an excellent eye surgeon to his care team!

Surgery is scheduled for 11:45 tomorrow, and I will update afterwords.

Thank you for your continued thoughts and prayers!!

Keep Pounding Room at LCI

Levine Cancer Institute (LCI) has a new room for patients and caregivers to relax in, while in between appointments and testing.

We stopped in briefly this morning and took a few pictures. This is a welcome addition for cancer patients and families!!

More pictures and much more information to come. For our new friends to LCI, this is located next to Lori’s gifts, in between LCI I and LCI II buildings, on the 3rd floor (right around the corner from Caribou Coffee).

Good report with a slight detour

Great news, the labs from today look great!! Once again, no active multipe myeloma! Thank you for your prayers and thoughts, Keep Pounding Rob team!!😊👍😊👍

Now for the slight detour:

Today at Rob’s monthly infusion, Rob began having trouble seeing out of his right eye. It came on fast, and he could not tell you how many fingers you held up, and then couldn’t tell you the color of your hair. Right now, he can’t see you wave at him standing a foot away.

After consulting with the hematologist, we were worked into the ophthalmologist office. We learned that Rob had an eye bleed, causing Rob to not see out of his right eye. The good news is that there is no damage to the optic nerve.

They think the blood should drain within 48 hours, and then his vision should return. Rob will then see a retina specialist.

He doesn’t think it is multiple myeloma related, thankfully!

He did mention wanting Rob off of the daily aspirin that he is on (to prevent blood clots caused by the chemo), but also understands this might not be possible. We’ll know more on that next week.

Hopefully, this is a minor issue that comes with age and nothing else. We will know more Wednesday, and post an update then.

Thank you for the continued prayers and thoughts, Keep Pounding Rob team!!

Multiple Myeloma Teams for Cures Walk/Run 5k!

Hi Keep Pounding Rob team!!

A quick update, and then on to some EXCITING news!!!

Rob had a great monthly report from Levine today! His cancer remains inactive. He will have a lung scan next week, as a proactive approach to keep an eye on an area there. He’s continuing monthly IVIG infusions, labs, palliative care and oncology appointments.

Thank you for your continued thoughts and prayers!!

EXCITING NEWS!!!

What: Multiple Myeloma Research Foundation Team for Cures 5K Walk/Run

When: Saturday, October 26th, 2019

Where: Clanton Park 1520 Clanton Rd. Charlotte, NC 28208 

Keep Pounding Rob Walk Page: https://walkrun.themmrf.org/Charlotte/KeepPoundingRob

On October 26th, 2019, Rob and I are participating in a walk to raise funds for the Multiple Myeloma Research Foundation. (MMRF).

A brief explanation directly from the MMRF website of how amazing this organization is in the fight for a cure:

“The mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. Nearly 90% of total budget goes directly to research and related programming. The MMRF has been awarded Charity Navigator’s coveted four star rating for 12 consecutive years, the highest designation for outstanding fiscal responsibility and exceptional efficiency. The MMRF has facilitated unprecedented accomplishments including helping to bring ten new drugs to market that are now standard therapies for patients with multiple myeloma and being used or explored as treatments for other cancers.”

We are excited to join other multiple myeloma fighters on October 26th!! If you’d like to participate in the walk with us, either in person or as a “virtual” walker, please visit Rob’s Keep Pounding walk page here:

https://walkrun.themmrf.org/Charlotte/KeepPoundingRob

All donations go directly to the Multiple Myeloma Research Foundation.

Thank you, Keep Pounding Rob team!!! We never dreamed Rob would be preparing to walk a 5K, and appreciate your thoughts and prayers that helped him get to this point!!

A picture’s worth a thousand words!

Hi Keep Pounding Rob team!

Before I explain the pictures, Rob’s monthly cancer labs look good! The multiple myeloma remains inactive at this time. We are so thankful! Chemo continues with three weeks on, one week off.

He had excellent reports from his cardiologist and rheumatologist, and will follow up in six months. 

We are monitoring blood pressure regularly, and we have found a good balance with one medicine helping lower the high heart rate while another is helping raise the low blood pressure (due to chemo and stem cell transplant).

Now to the pictures: The pictures above are incredibly significant and we wanted to share. The picture of Rob on the stairs (which he had no idea I took), says so much about his recovery. 

This is the first set of steep steps (other than the ones leading to our back yard) that he has mastered. While going up and down steps is still tricky, he now can attempt-and succeed –at walking up and down stairs in public.  We have always said slow and steady wins the race-and now the staircase!  😉

The second picture was taken recently with our dog, Dexter. This is significant as a year ago, Rob was throwing the tennis ball for Dexter. That’s when he first felt pain in his shoulder, and he thought he had injured it throwing the ball. 

When he became unable to lift his arm, we knew something more was going on. Granted, we had no idea it was cancer, as that was the furthest thing on our mind.  Looking back at a year ago, we would have never imagined that Rob would have been diagnosed with cancer, have 8 cancerous tumors, undergo chemo (including high dose), a stem cell transplant, and continuing chemo today.  After the diagnosis, we never thought that less than a year later, the multiple myeloma would be inactive and under control.  We also would have never imagined the support, love and kindness shown to us by our amazing Keep Pounding Rob team!!

Thanks to his amazing medical teams and all of you, we can enjoy and embrace these pictures of everyday life on a whole new level!! A picture really is worth a thousand words!!

Up Next: 

Rob continues chemotherapy, and can venture out more, with caution (having hand sanitizer and masks nearby, and avoiding anyone is who is knowingly sick). He’ll get re-vaccinated this month. Anyone who goes through multiple myeloma, chemotherapy and a stem cell transplant losses significant portions of his or her immune system, including the protection provided by all vaccinations received as a newborn.  The other vaccinations occur 1 and 1 ½ years after transplant.

Lung scans will occur in the fall, to keep a proactive eye on an area there. 

We’ll continue to provide updates here, along with some information about resources that LCI offers cancer patients and families. 

Good luck to everyone preparing for (or already at) school and college!

Thank you for helping us Keep Pounding!!