Leap Day Update

Happy Leap Day! 🙂

Today was a long day at Levine Cancer

The first appointment consisted of more paperwork for the trial, and he turned in the  24-hour urine test.

This appointment also answered our questions on the PET scan- if Rob gets cleared for the trial (including labs/bone marrow biopsy results)- he will likely not need a second PET scan since he had one recently.

If for some reason he doesn’t meet the criteria on labs, then he will probably need a second one in the future.

Finally, they did a neurocognitive test, and checked his handwriting by having him write a sentence.

The reason for this is because the drugs can cause neurocognitive difficulties. These tests establish a baseline of what his neurocognitive status and his handwriting is now verses how the meds impacts it once he begins treatment. Thankfully, they said side effects are temporary.

Much more to come on this as we learn which arm of the trial he will be going through, and potential side effects.  Ya’ll are learning right alongside us, and we are so appreciative of that!❤️

Next up, we had some time for a picnic lunch in the car, and a brief visit in the Keep Pounding lounge. It provided a much needed quiet place to relax in very comfortable chairs.

Next was labs (22 tubes!), and then we returned to the hematology floor  for the bone marrow biopsy.  I’ll update our blog as labs and biopsy results come in.

For anyone else facing any challenges, Keep Pounding!!

Thank you so, so much for all of your support and love! ❤️