Hi everyone,
Thank ya’ll for being here!❤️
The pre-screening scheduling for the clinical trial has started, with many tests being ordered.
The patient portal shows 34 upcoming tests, many of which are labs.
In addition to the 34 tests scheduled, he will have pre-screening tests in cardiology, pulmonary, skeletal imaging, and a PET scan. Since he had the PET scan recently, we don’t know if that will be scheduled before or after the first round of the trial.
24 hour urinalysis test will be done next week, along with a bone marrow biopsy, labs, and an appointment with his hematologist oncologist.
The fatigue has been increasingly worse. We are wondering if his platelets are low, or if it is from the multiple myeloma coming back (one of the symptoms), or both. We look forward to labs next week to see if they can pinpoint anything that would be a cause.
This is the hurry up and wait part, as he goes through the clinical trial pre-screening process. I will keep updating along the way, and hopefully, I can begin writing about the next line of treatment soon.
We appreciate your love and support through this so much! Thank you!!
For anyone else facing challenges, whatever those challenges are, we are here for you too-please don’t forget that! 🙏❤️ Keep Pounding!!❤️👊

Always glad for your updates & supporting you from behind the scenes ❤️🙏💯
Sally
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