Nov. 27 update

Hi everyone

Here is my update from Rob’s appointment this morning.

The two spikes in lambda light chains are “very significant” according to his multiple myeloma specialist. Shw said the lambda chains spiking are the first indicators his multiple myeloma is trying hard to relapse.

Rob’s lambda light chains (the numbers which spiked twice in a row) are the first to show signs of relapse, before abnormalities appear on other multiple myeloma tests (such as the M-Spike lab).

Rob currently has no M-Spike, but 2 signicant lambda light chains spikes.

It was significant enough to discuss the next lines of treatment, while she also acknowledged that the numbers could stabilize where they are.

A clinical trial was discussed as one option, and treatment with another drug was a second option.

By her laying the groundwork for what to expect, we have a plan in place if needed after his next appointment in January.

If there is a 3rd spike, she said we would begin new treatment protocol immediately. They will wait for the next lab appointment in January to confirm or rule out a relapse.

If Rob begins having any bone pain or other symtoms, we are to call ASAP, and they will have him come in before the next appointment.

Rob’s anxiety was noticeable as we were leaving, and how could he it not be? He has had 4 years and 9 months of regular myeloma labs, minus the last two labs.

It is surreal to be talking about possible next lines of treatment.

As surreal as it seems, it is important to stay in the moment, and not be in denial.

It’s important to acknowledge his fear and anxiety about the spikes and hear what his concerns are. If you could have seen his face yesterday, you would have seen the fear written all over his face immediately following the appointment.

Ya’ll know Rob fights this beast with courage, tenacity, and positivity, yet, we know when to acknowledge that things are moving in a different direction, as they are now. It certainly doesn’t mean the numbers won’t go back down, and we hope like heck that they do! 🙂 We just can’t ignore what it’s done thus far.

It is imperative from a mental health and physical health perspective that we not be in denial, but ready to Keep Pounding!

We’ll continue to share the good and the bad, as so many have shared with us on their journey. It helps us not feel so alone, as does your support and love!

Thank you for the calls, texts, and blog messages!

We appreciate the support and love more than words can express in a post.

Ya’ll help us share and process information as it comes in, and listen with kindness and grace. It helps Rob to Keep Pounding!

Thank you, thank you, thank you. ❤️❤️❤️❤️